Hope for Lydia: Louisiana family's fights to save 3-year-old with Sanfilippo Syndrome

Hope for Lydia: Louisiana family's fights to save 3-year-old with Sanfilippo Syndrome

SHREVEPORT, La. (KTAL/KMSS) — A mother fighting for her 3-year-old daughter is on a mission to raise $6 million for a potential treatment awaiting FDA (Federal Drug Administration) approval. Lydia, a bright, fun and loving little girl living with a rare and terminal genetic disorder called Sanfilippo Syndrome, often referred to as childhood Alzheimer’s, was diagnosed at just 18 months old, her mom says there’s now a glimmer of hope. “A week and …