US EditionWhy those of us with FSHD feel like we’re always in transition
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Why those of us with FSHD feel like we’re always in transition
During a recent facioscapulohumeral muscular dystrophy (FSHD) wellness group meeting via Zoom, we each shared how we were feeling about our disease journey. One participant said, “I feel like I’m always in transition.” I can relate to that. With FSHD, the need to adapt seems never-ending, a topic that has frequented my thoughts over the last few months. I thought about jokingly asking if folks were interested in joining a new organization called…
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