A day of reflection leads me to a place of gratitude as a DMD mom
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A day of reflection leads me to a place of gratitude as a DMD mom
Once again, I’m writing from an uncomfortable chair in an infusion room as my son Max participates in a clinical trial. I frequently visit this room with my three sons — Max, 19; Rowen, 16; and Charlie, 14 — who live with Duchenne muscular dystrophy (DMD). It’s a boring day. Well, let me take that back. Parts of the day are long and tedious because we’re sitting in this small square room, probably no more than 12 feet by 12 feet. I find myself l…
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