Novel Access Model For Sickle Cell Disease Gene Therapy Could Be Template

An aspiring Louisiana pilot can’t fly with sickle cell disease, so he’s editing his genes

Daniel Cressy, 22, of Metairie, begins a gene therapy treatment to cure his sickle cell disease at Manning Family Children's Hospital in New Orleans on July 30, 2025. Manning Family Children’s is the only hospital in Louisiana to offer gene therapy treatments for sickle cell disease, which is typically cured through bone marrow transplants. (Christiana Botic/Verite News and CatchLight Local/Report for America)NEW ORLEANS – Daniel Cressy yawned, …

Novel Access Model For Sickle Cell Disease Gene Therapy Could Be Template

If successful, the access model for sickle cell disease gene therapies could serve as a blueprint for other such treatments that have faced major patient access barriers.

Novel Access Model For Sickle Cell Disease Gene Therapy Could Be Template – RamaOnHealthcare

The Centers for Medicare and Medicaid Services announced in July that 33 states, the District of Columbia and Puerto Rico will join a new voluntary program intended to improve patient access to and lower costs for gene therapies targeting sickle cell disease. This was a Biden administration initiative, which the Trump administration decided to continue [...]