US EditionFederal government working to expand access to 'transformative' sickle cell treatments, HHS Secretary RFK Jr. says in Charleston
- The 9th Annual Leadership Summit of the Sickle Cell Community Consortium was held to celebrate resilience within the sickle cell community, focusing on collective action for impactful change.
- SC3's Sharonda Sikes emphasized the organization's growth to over 90 domestic and 25 international partner organizations, busting myths about division in the community.
- Gene therapy for sickle cell disease, approved by the FDA at the end of 2023, is being provided at St. Louis Children’s Hospital to patients aged 12 and older, despite associated risks.
- Martin, a teenager with sickle cell disease, expressed relief at positive results from the new FDA-approved gene therapy, stating, 'It does bring me peace of mind to know that I'm going to end up OK.
7 Articles
7 Articles
Sickle Cell Community Consortium holds 9th Annual Leadership Summit in Atlanta
At the 9th Annual Leadership Summit and General Assembly of the Sickle Cell Community Consortium (SC3), leaders, patients, caregivers, and advocates gathered to celebrate a decade of resilience.Held at the Atlanta Airport Marriott on Saturday, April 26, the event’s theme, “Legacy of Leadership: Advancing Leadership for Impactful Change,” reflected the Consortium’s mission: collective action by and for the sickle cell community.Founded by Dr. Lak…
Federal government working to expand access to 'transformative' sickle cell treatments, HHS Secretary RFK Jr. says in Charleston
CHARLESTON, S.C. (WCBD) -- One of the Trump administration's top health officials said Friday that the federal government is working to expand access to and lower the cost of "transformative" treatments for Medicaid recipients with sickle cell disease. Health and Human Services Secretary Robert F. Kennedy Jr. spoke about the initiative during the National Conference of Insurance Legislators' spring meeting at the Francis Marion hotel in downtown…
Most US States Ok Medicaid Pilot for Sickle Cell Gene Therapies
Thirty-five states have agreed to participate in a federal pilot program aimed at helping Medicaid patients access costly gene therapies for sickle cell disease, Health and Human Services Secretary Robert F. Kennedy Jr. said Friday.
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