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Facing The Uncertainty of GACI – Sienna’s Story – Patient Worthy

Summary by Patient Worthy
Only about 50% of those born with GACI survive. Patient Worthy is grateful to GACIGlobal for the ability to share Sienna’s Story.  GACI Global is a nonprofit organization whose mission is to connect families affected by Generalized Arterial Calcification of Infancy or Hypophosphatemic Rickets caused by ENPP1 Deficiency or ABCC6 Deficiency to each other and […]
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Patient Worthy broke the news in on Monday, March 17, 2025.
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