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Top Patient Worthy News

Stock Markets · Winnipeg

US organ donation system faces scrutiny and changes after reports of disturbing near-misses

73% Center coverage: 11 sources

The U.S. is developing new safeguards for the organ transplant system after an investigation found a Kentucky group continued preparations for donation by some patients who showed signs of life.See the Story

Finland · Finland

Nordic Study Links PNH-Related Blood Clots to Higher Risk of Kidney Failure – Patient Worthy

A new Nordic study has revealed a significant link between blood clots caused by paroxysmal nocturnal hemoglobinuria (PNH) and an increased risk of kidney failure. PNH is a rare, life-threatening blood disorder characterized by the destruction of red blood cells, leading to various complications, the most severe of which include thrombosis—dangerous blood clots that can […]Read Article

United States · United States

Medicaid Launches Innovative Payment Model to Expand Access to Sickle Cell Gene Therapies – Patient Worthy

The U.S. Medicaid program has taken a pioneering step to ensure that new gene therapies for sickle cell disease (SCD) are accessible to the millions of Americans who rely on public health insurance, as was reported by BioPharma Dive. On July 25, 2024, the Centers for Medicare & Medicaid Services (CMS) announced the launch of […]Read Article

Too Little Too Late: A Mom’s Plea for Improved GACI Screening – Patient Worthy

Acknowledgement: Patient Worthy is honored to share this story from our friends at GACI Global. To view the original article, please click here. Sharon’s passion for children shines in her work as a medical assistant in pediatric neurology. Although she loves working with kids, she was unsure about whether she wanted to become a parent […]Read Article

ScanCell’s Skin Cancer Vaccine Shows Phase 2 Promise, but Only One Candidate Moves Forward – Patient Worthy

ScanCell, a biotech firm focused on immunotherapies, announced promising results from Phase 2 clinical trials for its skin cancer vaccines, but only one of its two candidates will advance to the next stage of development. The announcement marks a significant step in the company’s efforts to harness the immune system to combat melanoma, a particularly […]Read Article

Patient Voices Shape Progress in PNH and Aplastic Anemia Care – Patient Worthy

A growing focus on patient-reported outcomes (PROs) is transforming the management of Paroxysmal Nocturnal Hemoglobinuria (PNH) and aplastic anemia, two rare and serious blood disorders. According to a recent article in MedPage Today, incorporating the patient perspective has become essential in evaluating treatment effectiveness and guiding clinical decisions for these conditions. PNH and aplastic anemia […]Read Article

When defining UMN, the EU must not leave PKU patients behind – Patient Worthy

Patient Worthy is grateful to provide you this story on behalf of the European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria. E.S.PKU is the umbrella organization of about 41 national and regional associations from 31 countries established by parents. Since 1987, representatives of most European countries have come together to improve the quality […]European Union Read Article

New Neutrophil Modulator Shows Promise for Safer, More Effective Ulcerative Colitis Treatment – Patient Worthy

A new investigational therapy targeting neutrophils, a type of white blood cell, may offer a safer and more effective option for patients with ulcerative colitis (UC), according to recent research highlighted by Healio. UC is a chronic inflammatory bowel disease characterized by persistent inflammation and ulcers in the colon, often resulting in symptoms such as […]Read Article

Advancing Therapies Propel Paroxysmal Nocturnal Hemoglobinuria Treatment Market Toward Robust Growth by 2034 – Patient Worthy

The global market for treating Paroxysmal Nocturnal Hemoglobinuria (PNH), a rare but serious blood disorder, is poised for significant growth through 2034, according to a recent analysis by DelveInsight reported by MENAFIN. This optimistic outlook is fueled by a dynamic clinical development pipeline and rising awareness of the disease, which causes red blood cells to […]Read Article

An interview with Johnny’s Mom: A Dravet Syndrome Family Life – Patient Worthy

Danielle’s baby boy had a long and terrifying seizure on the 4th of July six years ago. The family was at her mother’s home. Both Danielle and her mother are nurses. They rushed the infant to the hospital. He was treated immediately with rescue medication for seizures through IV. While the seizure stopped after approximately […]Read Article

Revolutionary Test: as a Smear of Skin Shows Parkinson's Disease 7 Years Before Symptoms - Global Happenings

Parkinson’s disease remains one of the most difficult to diagnose neurological diseases. Its detection in the initial stages can significantly improve the quality of life of patients and the effectiveness of treatment. New studies show that a simple skin smear can be a breakthrough with the early detection of this disease. This technology opens up new prospects for non -invasive screening and monitoring Parkinson’s disease long before the first …Parkinson's Disease · Manchester See the Story

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Top Patient Worthy News

US organ donation system faces scrutiny and changes after reports of disturbing near-misses

Nordic Study Links PNH-Related Blood Clots to Higher Risk of Kidney Failure – Patient Worthy

Medicaid Launches Innovative Payment Model to Expand Access to Sickle Cell Gene Therapies – Patient Worthy

Too Little Too Late: A Mom’s Plea for Improved GACI Screening – Patient Worthy

ScanCell’s Skin Cancer Vaccine Shows Phase 2 Promise, but Only One Candidate Moves Forward – Patient Worthy

Patient Voices Shape Progress in PNH and Aplastic Anemia Care – Patient Worthy

When defining UMN, the EU must not leave PKU patients behind – Patient Worthy

New Neutrophil Modulator Shows Promise for Safer, More Effective Ulcerative Colitis Treatment – Patient Worthy

Advancing Therapies Propel Paroxysmal Nocturnal Hemoglobinuria Treatment Market Toward Robust Growth by 2034 – Patient Worthy

An interview with Johnny’s Mom: A Dravet Syndrome Family Life – Patient Worthy

Revolutionary Test: as a Smear of Skin Shows Parkinson's Disease 7 Years Before Symptoms - Global Happenings

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Too Little Too Late: A Mom’s Plea for Improved GACI Screening – Patient Worthy

ScanCell’s Skin Cancer Vaccine Shows Phase 2 Promise, but Only One Candidate Moves Forward – Patient Worthy

Patient Voices Shape Progress in PNH and Aplastic Anemia Care – Patient Worthy

When defining UMN, the EU must not leave PKU patients behind – Patient Worthy

New Neutrophil Modulator Shows Promise for Safer, More Effective Ulcerative Colitis Treatment – Patient Worthy

Advancing Therapies Propel Paroxysmal Nocturnal Hemoglobinuria Treatment Market Toward Robust Growth by 2034 – Patient Worthy

An interview with Johnny’s Mom: A Dravet Syndrome Family Life – Patient Worthy

Revolutionary Test: as a Smear of Skin Shows Parkinson's Disease 7 Years Before Symptoms - Global Happenings