Castlewellan family overwhelmed by support for Ben

Castlewellan family overwhelmed by support for Ben

The mother of a six-year-old Castlewellan boy born with a rare genetic syndrome has said her family is “overwhelmed” by the response to a fundraising campaign to help pay for life-changing therapy. Two years ago, Ben McAleenan was diagnosed with an ultra-rare genetic condition, Pitt-Hopkins Syndrome. The disorder causes, amongst other things, developmental delays and breathing problems, and in Ben’s case, he is unable to walk, has low muscle ton…