A man with hemophilia B shares his gene therapy story, part 1

A man with hemophilia B shares his gene therapy story, part 1

First in a series. Have you ever wondered what it’s really like to receive gene therapy? I know I have. So when I had the chance to interview 75-year-old Chip Hailey of Tennessee — one of the participants in a clinical trial for Hemgenix (etranacogene dezaparvovec), the first gene therapy approved in the U.S. for hemophilia B — I jumped at it. Volunteering for a gene therapy clinical trial requires extraordinary bravery. It means stepping into t…