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Top Hypoparathyroidism News News

Celebrating 2 years on Yorvipath, my hypoparathyroidism treatment
Mississippi · Mississippi

Celebrating 2 years on Yorvipath, my hypoparathyroidism treatment

When I was a teenager, adults used to tell me time sped up every year. I scoffed in that way kids do when they don’t believe an adult, but I swear these days that time is nonsensical. This week marks my two-year anniversary on Yorvipath (palopegteriparatide), the first and only treatment approved by the U.S. Food and Drug Administration for hypoparathyroidism. It somehow feels like a lifetime ago and just last week. Looking back over the last tw…Read Article
Feeling hopeful about the future of hypoparathyroidism treatment
Mississippi · Mississippi

Feeling hopeful about the future of hypoparathyroidism treatment

“Knowledge is the light of the mind.” — University of Delaware’s motto May 27, 1995, was a significant day in my life. It was the day I graduated from the University of Delaware, a momentous occasion held at the school’s football stadium in Newark. The hot and sunny Memorial Day weekend was the backdrop for me to proudly receive a bachelor’s degree in science. This achievement, coupled with the lifelong friendships I formed, the knowledge I gain…Read Article
What I learned from a medication injection mistake
Mississippi · Mississippi

What I learned from a medication injection mistake

I was having an incredible week! I’d pushed my body to the limit to meet my book deadline and had finished on time. I took part in a rare career opportunity and went to sleep on Tuesday night celebrating. Wednesday morning, I had to make a call about the opportunity, which I did while prepping an injection of my medication. Thus began a chain reaction that would lead to a dosing error. Yorvipath (palopegteriparatide), my hypoparathyroidism treat…Read Article

Why I still wear a mask as someone with hypoparathyroidism

When I walk into the small, LGBTQ-owned salon that has seen my best and worst hypoparathyroidism days, I’m always relieved that I can just be me. Not only is it a place of safety and comfort for me as a queer woman, but also as a person with a rare disease. The salon is small, and I’m scheduled when only one or two stylists are working. There’s a couch if I need a break, a bathroom close by, and a chair that is spaced away from other clients. Be…United States · United StatesRead Article

Women, Hispanic patients at risk for post-surgery emergency visits

Women, Hispanic patients, people who have other health problems, and those who have more lymph nodes removed are at higher risk of emergency visits for hypoparathyroidism after thyroid surgery, a study found. “Most risk factors identified are not modifiable, but they help identify high-risk patients who could benefit from targeted postoperative care (programs) to reduce unplanned [emergency department] visits,” wrote the researchers, from the Un…Davis, California · DavisRead Article

A Mother’s Day visit to my daughter ended up a health boost

“You’re never too old to need your mom.” — Drew Vapnek Life with hypoparathyroidism, more simply nicknamed hypopara, is so unpredictable. I never know if I’ll have a good or bad day. The past few months have been a roller coaster as I wean down from my 60 mcg dose of Yorvipath (palopegteriparatide), which I’m taking as part of a Phase 2 clinical trial, to 30 mcg, a dose approved by the U.S. Food and Drug Administration. Since then, I’ve experien…Mother's Day · AtlantaRead Article

Six ways to stop mental health shame during Mental Health Awareness Month - 41NBC News

ATLANTA, Georgia (CNN) — More than one in five U.S. adults live with a mental illness, yet only about half of them receive treatment. This discrepancy is often due to factors such as a lack of awareness, limited access to care, financial barriers, or, most notably, the stigma surrounding mental health. Why people avoid seeking help for mental health struggles Licensed therapist Jody Baumstein of Children’s Healthcare of Atlanta emphasizes that t…HealthSee the Story

Why it’s important to me to write books with disabled characters

Books have always been a constant in my life. I remember collecting “Goosebumps” by R.L. Stine and “The Vampire Diaries” by L.J. Smith, and I still have a few first editions on my bookshelf. From romance and Westerns to cozy mysteries and fan fiction on Archive of Our Own website, I’ve read thousands of words over thousands of hours. But I can still count on two hands the number of main characters with disabilities — who weren’t villains — that …Read Article

Encaleret developer aims for clinical trial in chronic...

Treatment with the investigational therapy encaleret normalized calcium levels for most people with chronic hypoparathyroidism in a small proof-of-principle study. That’s according to data announced by Bridgebio Pharma, which is developing encaleret with its affiliate Calcilytix Therapeutics. The company said it hopes to launch a clinical trial that could serve as a basis for encaleret’s approval for chronic hypoparathyroidism in 2026. Hypoparat…Mississippi · MississippiRead Article

Fighting our battles with head held high

“Life is 10% what happens to us and 90% how we react to it.” — Charles R. Swindoll My adult children invited me to Walt Disney World for Labor Day weekend in 2023. They know I always try to make things happen when they have a request. Since they’re also best friends, I was thrilled to be included. Their motivation stemmed from college game day, when my kids’ teams — the Florida State Seminoles and the Louisiana State University Tigers — met for …Mississippi · MississippiRead Article

The uncertainty of hypopara gives me anxiety about the future

Note: This column describes the author’s own experiences with Natpara (recombinant human parathyroid hormone) and Yorvipath (palopegteriparatide). Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. For the first time in three years, I’m about to finish a full-length novel. As I race toward my book deadline, my back is in an unrelenting spasm, but I’m focused and determined and feel l…Mississippi · MississippiRead Article

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