Bioethics calls to care for the privacy of the patient even in research

On 25 March, the European Area of Health Data (EEDS) was launched, an ambitious project promoted by Brussels for countries to coordinate patient information and give a boost to scientific and health research. Spain’s Bioethics Committee describes this project as a “fundamental change” because it means the “paulatine disappearance of informed consent” in biomedical research. One of the keys of the European Regulation is that it guarantees a “righ…

At the beginning of April 2025, a broad-based workshop in Bern focused on the challenges and opportunities of secondary use of health data. As a representative of civil society, the digital society has proposed a basis for protecting and trusting in the second use of these sensitive data with the introduction of the data protection concept and its protection objectives. Personal health data is one of the particularly valuable personal data. On t…