B.C. Health Ministry restores drug funding for girl with rare disease

‘This nightmare is over’: Langford girl has funding restored for treatment of rare disease

Charleigh Pollock has been battling Batten disease since she was born. The post ‘This nightmare is over’: Langford girl has funding restored for treatment of rare disease appeared first on Victoria Buzz.

B.C. health minister apologizes to family of 10-year-old girl with rare disease

British Columbia Health Minister Josie Osborne is “sincerely apologizing” to the family of a 10-year-old girl on Vancouver Island with a rare disease after a public fight over the province’s decision to cut off paying for her medication.

B.C. resumes drug payments for Langford girl with rare disease

A group of rare-disease experts asked the province to reverse its decision to cut off funding of medication for a 10-year-old Langford girl.

B.C. reinstates coverage of $1M drug for girl with rare condition

British Columbia's minister of health says the province has reinstated coverage for an expensive drug used by a Vancouver Island girl with a rare and terminal genetic disorder.

Minister restores drug funding for B.C. girl with rare disease

The government had cut off the funding last month for the girl’s treatment with Brineura, which costs about $1-million a year

B.C. reinstates Langford girl's Brineura coverage, health minister confirms

The family has been pushing to have coverage reinstated