The disability advocates who inspire me to become whole

The disability advocates who inspire me to become whole

I live with spinal muscular atrophy (SMA), a condition that, in my case, makes it impossible for me to move my body on my own. But that’s not where my story begins — or ends. People often call me strong, but they rarely see the whole picture. They don’t see the hours I spend coordinating care, the mental gymnastics of daily living, or the ache of watching the world speed by while I wait for someone to move my arm. They see resilience, but not th…