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Anaheim · AnaheimThe new “Superman” movie features talking robots, giant monsters, interdimensional portals, and a crowd-pleasing, super-powered canine. Multiple heroes and villains factor into the story, and the action sequences involve a plethora of CGI-heavy special effects. It’s a big and fantastical summer blockbuster, the kind of spectacle that the superhero genre is known for. Yet as much as I enjoyed these elements and seeing some of my favorite DC Comic…Read Article
In my world with SMA, I’m like Superman, ‘as human as anyone’
United Kingdom · United KingdomMost parents and potential parents in the U.K. support screening newborns for spinal muscular atrophy (SMA) as part of the National Health Service (NHS) Newborn Screening Programme, according to a survey developed and funded by Novartis. “We believe that this government has an opportunity to make newborn screening for SMA a reality,” Johan Kahlström, country president and managing director of Novartis U.K. and Ireland, said in a company press re…Read Article
Parents in UK support national SMA screening for newborns by wide...
United States · United StatesI live with spinal muscular atrophy (SMA), a condition that, in my case, makes it impossible for me to move my body on my own. But that’s not where my story begins — or ends. People often call me strong, but they rarely see the whole picture. They don’t see the hours I spend coordinating care, the mental gymnastics of daily living, or the ache of watching the world speed by while I wait for someone to move my arm. They see resilience, but not th…Read Article
