'It's an everyday thing': Omaha woman discovers rare disease through social media

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'It's an everyday thing': Omaha woman discovers rare disease through social media

Alyssa Hammers thought she was just clumsy until she saw a social media video that reflected her life.

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aachener-zeitung.de

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More and more rare diseases are registered. The search for a diagnosis can take many years and be very burdensome. As a case from Trier shows.

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Rare Disease Day has always been celebrated in Europe and Canada since 2008 on the last day of February. Affected people and their organs are struggling for attention on the subject.

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Within the framework of the World Day of Rare Diseases, physicians specialized in neurology reported that 70% appear in pediatric age and 35% of them die before the first year of age, so they expressed the need to improve the representation of people living with these conditions and their families. “As doctors, we know that an early diagnosis can make a big difference, and the case of low-prevalence diseases is no exception. Here the challenge i…

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MEXICO CITY- In an interview with EFE, geneticist David Cervantes Barragán, head of the Genetics Department of the Central South Hospital of High Specialty of Mexican Petroleums (Pemex), pointed out that many times the path of patients is long, as they visit up to 8 or 10 doctors before achieving the diagnosis of their condition. “That for the patient is a challenge, because many times in order for him to arrive with the right doctor he has to t…

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By Sascha VennemannTheir names often consist of abbreviations, numbers or are preceded by the word "syndrome" - around 300 million people worldwide have rare diseases. In total, there are more than 6,000 different diseases, some of which only affect a few hundred people or even fewer. More than 70 percent of them are due to genetic causes. more...