'Money Can't Come Into It': Friedrich's Ataxia Sufferers Plead for Approval of Life-Changing Drug

'Money can't come into it': Friedrich's ataxia sufferers plead for approval of life-changing drug

Friedrich's ataxia patients wait anxiously to see if Skyclarys will be approved by the HSE’s senior management team on August 25

TDs call on pharma company to work with HSE to give access to life-changing drug Skyclarys

The HSE has refused to fund the drug, which costs €288,000 per patient per year.