'I Feel I’ve Let Him Down': Father Devastated After HSE Group Rejects Funding for Son's Drug

Father of boy with Friedreich’s ataxia devastated as HSE recommends against drug funding

Craig Coady lost his 13-year-old son Rory to the disease last year and says his other son Paudie had hoped to benefit from the drug

'I feel I’ve let him down': Father devastated after HSE group rejects funding for son's drug

Around 200 people in Ireland are living with the rare neurological disease and have been campaigning for the drug to be made available by the HSE

'If it's down to money, shame on them': Bereaved Cork dad hits out at decision not to fund drug

HSE Drugs Group recommended against funding Skyclarys, a treatment for the rare genetic condition Friedreich's ataxia, despite hopes it could benefit around 200 patients in Ireland