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Preparing for the future wasn’t high on my priority list

Summary by Epidermolysis Bullosa News
Jonah got his first promotional card from a college last week. We were told that my son, who’s now almost 16, very likely wouldn’t make it to his first birthday, because he was born with epidermolysis bullosa (EB). Now he’s just received an invitation to check out a college. It’s a college we’ve never heard of, and he has zero desire to go there, but still. He’s made it to the age where we have to start thinking about college. I am not ready! No…
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Preparing for the future wasn’t high on my priority list

Jonah got his first promotional card from a college last week. We were told that my son, who’s now almost 16, very likely wouldn’t make it to his first birthday, because he was born with epidermolysis bullosa (EB). Now he’s just received an invitation to check out a college. It’s a college we’ve never heard of, and he has zero desire to go there, but still. He’s made it to the age where we have to start thinking about college. I am not ready! No…

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Epidermolysis Bullosa News broke the news in on Thursday, February 13, 2025.
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