One woman’s long journey to a von Willebrand disease diagnosis

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One woman’s long journey to a von Willebrand disease diagnosis

Sixteen years from symptoms to diagnosis. This statistic is quoted incessantly among women with bleeding disorders, describing the treacherous diagnostic journey we often endure. But what many don’t realize is that this figure came from one study of 75 women diagnosed with von Willebrand disease (VWD) who were registered at hemophilia treatment centers. The results were likely skewed, as these were women who had received a diagnosis. Many never …