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New drug offers hope to children with rare form of epilepsy

Summary

Hundreds of children with a rare and severe form of epilepsy are hoping a new drug being rolled out on the NHS may provide a better quality of life. Fenfluramine has been recommended by the National Institute for Health and Care Excellence (NICE) for patients aged two and over with Lennox-Gastaut syndrome (LGS).

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Sky News UK

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New drug offers hope to children with rare form of epilepsy

Fenfluramine has been recommended by the National Institute for Health and Care Excellence for patients aged two and over with Lennox-Gastaut syndrome - a rare and severe form of epilepsy that is resistant to many treatments.

1 day ago·United Kingdom

Hope for children with severe form of epilepsy as NHS rolls out new drug

Fenfluramine has been recommended by Nice for patients aged two and over with Lennox-Gastaut syndrome.

2 days ago·London, United Kingdom

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epilepsy.org.uk

Fenfluramine available on NHS for rare form of epilepsy LGS - Epilepsy Action

Epilepsy medication fenfluramine will be funded for NHS patients with Lennox-Gastaut syndrome (LGS) from today (20 February 2025).

23 hours ago

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Get Surrey

'New hope' as NHS rolls out drug for children with severe epilepsy

LGS is a rare and severe form of epilepsy that starts in early childhood

1 day ago·Surrey, United Kingdom

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england.nhs.uk

NHS England » NHS rolls out life-changing treatment offering ‘new hope’ for hundreds of children with severe epilepsy

Hundreds of children with severe epilepsy will be able to benefit from a groundbreaking new treatment on the NHS that could significantly reduce their seizures, providing new hope for them and their families. The drug, fenfluramine, will be funded for NHS patients in England from today (Thursday 20 February) after the National Institute for Health […]

2 days ago

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