US Edition‘I Am so Determined’: Jesy Nelson Vows to Fight for Newborn Screenings
Jesy Nelson revealed her twin daughters' SMA1 diagnosis to promote universal newborn screening, as 1 in 10,000 babies are born with spinal muscular atrophy worldwide, advocates say.
- On Sunday, Jesy Nelson revealed that her premature twin daughters Ocean Jade and Story Monroe Nelson-Foster were diagnosed with Spinal Muscular Atrophy Type 1, and she made it public to raise awareness.
- Nelson said the diagnosis followed her mother noticing the twins' reduced leg movement and later feeding difficulties, with initial doctors' reassurances before SMA1 testing; her pregnancy included twin-to-twin transfusion syndrome, which the NHS says affects 10% to 15% of identical twins.
- Nelson described the prognosis, saying `We were told that they're probably never going to be able to walk; they probably will never regain their neck strength, so they will be disabled`, and she outlined the girls’ endless hospital visits and gratitude for NHS SMA treatments.
- Scotland will begin screening from the spring, while the UK National Screening Committee currently advises against universal screening but has commissioned research, and Muscular Dystrophy UK calls for universal newborn screening.
- SMA1's clinical profile shows it is the most severe form with symptoms in the first six months, and an estimated one in 10,000 babies worldwide are born with SMA, campaigners urge newborn screening.
20 Articles
20 Articles
Jesy Nelson launches petition after twins diagnosed with devastating condition
Jesy Nelson has announced she is launching a petition and campaigning to have spinal muscular atrophy added to the NHS newborn heel prick screening programme.The former Little Mix singer revealed her plans in an Instagram story on Tuesday, following her emotional disclosure that her eight-month-old twin daughters have been diagnosed with SMA Type 1.The 34-year-old said she was determined to push for change so other families do not face the same …
Jesy Nelson, the British singer who was part of the Little Mix group, has shared with her followers a harsh news story: her two 8-month-old babies suffer from type 1 spinal muscle atrophy (AME). Nelson became a mother last May, when she had her two daughters, Ocean Jade and Story Monroe, as a result of her relationship with British musician Zion Foster, but has now received the aforementioned diagnosis. Type 1 spinal muscle atrophy (AME), also c…
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