Isabel Suffers From a Rare Connective Tissue Disease: “If I Sneeze, My Shoulder Can Dislocate”
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Isabel Suffers From a Rare Connective Tissue Disease: “If I Sneeze, My Shoulder Can Dislocate”
As a child, she was nicknamed ‘snake girl’ and seemed super flexible, but she also suffered from unexplained ailments. It was only ten years ago that Isabel Gielen (42) from Lummen was diagnosed: she suffers from hypermobile Ehlers-Danlos syndrome, a rare genetic connective tissue disease.
·Belgium
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