US EditionNo autism registry, real-time data platform to be created, HHS says
- The National Institute of Health director announced plans for a new national autism data registry on Monday, but HHS denies creating a registry.
- This initiative is part of the Health and Human Services Secretary’s broader autism research effort seeking solutions.
- The proposed platform aims to gather health data from records, pharmacies, and wearables for research.
- An HHS official stated, "We are not creating an autism registry."
- Advocacy groups and researchers criticize the plan, raising significant patient privacy concerns.
54 Articles
54 Articles
On April 16, U.S. Department of Health and Human Services secretary Robert F. Kennedy Jr. provoked backlashes in his country when he said autistic spectrum disorder (ASD) can be prevented, and promised to find the ‘environmental toxin’ behind the rising rates of what he called an ‘epidemia’ in the country.
Health agencies “not creating an autism registry,” official says
A Department of Health and Human Services official said Friday that the health department is not creating an autism registry, contradicting an announcement made days ago by the director of the National Institutes of Health describing his plans to study causes of autism. “We are not creating an autism registry. The real-world data platform will link existing datasets to support research into causes of autism and insights into improved treatment …
HHS Says Federal Government Not Creating Autism Registry
The Department of Health and Human Services (HHS) said on April 25 it is not creating a registry for autism, after some advocates raised concerns about what the National Institutes of Health (NIH) director had described as a new autism registry. “We are not creating an autism registry,” an HHS official told The Epoch Times in an email. Dr. Jay Bhattacharya, director of the NIH, told a meeting on Monday that NIH’s real-world data platform, drawin…
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