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An interview with Johnny’s Mom: A Dravet Syndrome Family Life – Patient Worthy

Summary by Patient Worthy
Danielle’s baby boy had a long and terrifying seizure on the 4th of July six years ago.  The family was at her mother’s home. Both Danielle and her mother are nurses. They rushed the infant to the hospital. He was treated immediately with rescue medication for seizures through IV.  While the seizure stopped after approximately […]
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Patient Worthy broke the news in on Monday, July 28, 2025.
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