After years of practice, my daughter succeeded at riding a trike

After years of practice, my daughter succeeded at riding a trike

For parents of children with rare diseases, progress is rarely linear. Each milestone is hard-earned, often built upon months or even years of trial, error, and perseverance. Our daughter, Rylae-Ann, was born with aromatic l-amino acid decarboxylase (AADC) deficiency. This rare genetic disease affects neurotransmitter production, resulting in significant challenges with movement and coordination. In the beginning, my wife, Judy, and I had a simp…