US EditionA Decade of Impact: Patient Worthy’s 10-Year Journey Empowering the Rare Disease Community – Patient Worthy
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The Uncommon Association launches a new launch of the campaign 'Living with the Weird' to make the story of Manuel, an 11-year-old Sevillian boy diagnosed with Dravet syndrome, a rare, serious and uncured genetic disease.
“Carolina Purpurina. Brilliant touring adventures” is a story starring Carolina, a girl with Leucodystrophy TUBB4A, a rare neurodegenerative disease caused by a genetic mutation. It is based on the real life of the little girl, but, as the prologue advances: “This is not just a history of disability, it is a story of capacity, a universal story for children and adults”, whose aim is to give visibility to this reality, while raising funds for res…
A Decade of Impact: Patient Worthy’s 10-Year Journey Empowering the Rare Disease Community – Patient Worthy
Launched in May 2015, Patient Worthy set out with a bold mission: to amplify the voices of rare disease and chronic illness patients, and to connect and inform a community often overlooked in mainstream healthcare conversations. Ten years later, the numbers tell a story of extraordinary growth, influence, and impact. A Platform for the Rare […]
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