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Real-World data in paediatric clinical trials: new JMIR publication - Fondazione Gianni Benzi Onlus

The article “The Potential to Leverage Real-World Data for Pediatric Clinical Trials: A Proof-of-Concept Study” has been recently published in the Journal of Medical Internet Research (JMIR). Viviana Giannuzzi from Fondazione Gianni Benzi is one of the authors. This publication is the result of collaborative work within the European conect4children (c4c) network, which brought together academic and industry partners to foster innovation in paedi…Bari, Apulia · Bari Read Article

Rare disease research boost for lysosomal scientists backed by Chiesi

100% Left coverage: 1 sources

Three scientists have been awarded research grants through Chiesi’s ‘Find For Rare’ programme to advance early-stage innovation in ultra-rare lysosomal conditions.Innovation · Brussel See the Story

EMA strategy to optimise use of data and artificial intelligence (AI) - Fondazione Gianni Benzi Onlus

The European Medicines Agency (EMA), together with the Heads of Medicines Agencies (HMA), has published a joint workplan "Data and AI in medicines regulation to 2028" to harness data and tools to drive research, support regulatory decisions, and accelerate access to better medicines. The workplan aims to improve data sharing, quality, and interoperability across the EU regulatory network, while upholding high security and ethical standards. It s…Artificial Intelligence · Italy Read Article

Calls for inclusion of pregnant and breastfeeding participants in clinical trials - Fondazione Gianni Benzi Onlus

The European Medicines Agency (EMA) has published a new draft guideline offering key recommendations for the inclusion and retention of pregnant and breastfeeding individuals in clinical trials. This initiative aims to support the generation of robust clinical data in these populations, enabling more informed, evidence-based treatment decisions. Developed through the International Council for Harmonisation (ICH), this guideline underscores that …Bari, Apulia · Bari Read Article

Why Genotype Compatibility Matters In Sickle Cell Prevention - NEWS AGENCY OF NIGERIA

Why Genotype Compatibility matters in Sickle Cell prevention 14 total views todayBy Uche Bibilari, News Agency of Nigeria (NAN) Sickle Cell Disease (SCD) is a genetic blood disorder that arises when both parents carry the sickle cell gene, creating a 25 per cent chance of transmitting the disease to their offspring with each pregnancy. Globally, an estimated 400,000 babies are born annually with […] NEWS AGENCY OF NIGERIA See the Story

A Causal Discovery Workflow for Rare Diseases: Experts-in-the-Loop Analysis of Sparse Longitudinal Data

Causal networks provide a mechanistic understanding of clinical phenomena, allowing for personalized and explainable decision-making. Causal discovery, namely the task of constructing such models, is challenging, particularly for rare diseases, where observational data are sparse, medical knowled...Artificial Intelligence See the Story

Have your say: EMA-EU plans for electronic product info for medicines - Fondazione Gianni Benzi Onlus

The European Medicines Agency (EMA) has launched a public consultation to collect input for a reflection paper on patient access to electronic product information (ePI). The ePI is the future electronic product information for medicines, and it is the outcome of a joint EMA-Heads of Medicines Agencies (HMA)-EC collaboration to facilitate informed decision-making by patients and healthcare professionals and improve overall patient safety. The ePI…Medical Read Article

Italy promotes animal research transparency initiative - Fondazione Gianni Benzi Onlus

Animal research remains essential for medical progress, despite ongoing efforts to develop alternative methods. Following an initiative by the National Committee for the Protection of Animals Used for Scientific Purposes, the Italian Ministry of Health is promoting the Transparency Agreement on Animal Research. The agreement invites institutions that conduct animal-based scientific research to publicly commit to greater openness about when, how…Italy · Italy Read Article

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EMA Encourages Use of New Approach Methodologies to Reduce Animal Testing

New stem cell therapy for blood cancer patients - Fondazione Gianni Benzi Onlus

WHO – Guide to prioritising health research - Fondazione Gianni Benzi Onlus

Real-World data in paediatric clinical trials: new JMIR publication - Fondazione Gianni Benzi Onlus

Rare disease research boost for lysosomal scientists backed by Chiesi

EMA strategy to optimise use of data and artificial intelligence (AI) - Fondazione Gianni Benzi Onlus

Calls for inclusion of pregnant and breastfeeding participants in clinical trials - Fondazione Gianni Benzi Onlus

Why Genotype Compatibility Matters In Sickle Cell Prevention - NEWS AGENCY OF NIGERIA

A Causal Discovery Workflow for Rare Diseases: Experts-in-the-Loop Analysis of Sparse Longitudinal Data

Have your say: EMA-EU plans for electronic product info for medicines - Fondazione Gianni Benzi Onlus

Italy promotes animal research transparency initiative - Fondazione Gianni Benzi Onlus

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Real-World data in paediatric clinical trials: new JMIR publication - Fondazione Gianni Benzi Onlus

Rare disease research boost for lysosomal scientists backed by Chiesi

EMA strategy to optimise use of data and artificial intelligence (AI) - Fondazione Gianni Benzi Onlus

Calls for inclusion of pregnant and breastfeeding participants in clinical trials - Fondazione Gianni Benzi Onlus

Why Genotype Compatibility Matters In Sickle Cell Prevention - NEWS AGENCY OF NIGERIA

A Causal Discovery Workflow for Rare Diseases: Experts-in-the-Loop Analysis of Sparse Longitudinal Data

Have your say: EMA-EU plans for electronic product info for medicines - Fondazione Gianni Benzi Onlus

Italy promotes animal research transparency initiative - Fondazione Gianni Benzi Onlus