Why son's diagnosis spurred North Wales family on to set up website on rare disease

Why son's diagnosis spurred North Wales family on to set up website on rare disease

A family from North Wales has established a website to help others affected by the same rare disease as their son.

Mum’s one call from her boy’s nursery led to a ‘rare and aggressive’ diagnosis - New York Times Post

RAFFI Starkowitz was just three years old when he suddenly became “unsteady” on his feet. The tot had previously been behaving and playing normally until nursery staff called his mum Nicky with worries that he was struggling to walk. 5 Raffi first became unsteady on his feet while at nursaryCredit: SWNS 5 Days later, doctors diagnosed him with a rare and aggressive form of brain cancerCredit: SWNS 5 Raffi with dad, NeilCredit: SWNS The parent…