B.C. Minister to Meet with Terminally Ill Girl’s Family After Ending Drug Coverage
- On June 19, the British Columbia government halted funding for Charleigh Pollock's Brineura treatment, with her next infusion scheduled for July 3.
- The province used a 12-year-old motor-language scoring tool developed during Brineura’s original trial to determine eligibility, citing her decline meeting the outdated criteria.
- Data shows Brineura offers seizure control, longer life, and cognitive benefits, with over a decade of real-world evidence attributing patient survival to infusions.
- Without treatment, Charleigh's condition is expected to decline, marking the first global case of coverage removal outside her family's or physician's control, creating uncharted territory.
- On July 4, Charleigh Pollock’s family will meet with BC’s Health Minister, supported by advocacy groups, to discuss the treatment funding decision.
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B.C. minister to meet with terminally ill girl’s family after ending drug coverage
British Columbia’s health minister will meet this week with the mother of a terminally ill nine-year-old girl after the province announced it would no longer fund a drug to treat her rare condition.
·Toronto, Canada
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