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NMO Profile: Making a Difference with the WFH in the Dominican Republic

Summary by WFH - World Federation of Hemophilia
National member organizations (NMOs) are the heartbeat of the World Federation of Hemophilia (WFH). The WFH works in close collaboration with NMOs to provide them with support tailored to their realities to help them increase the level of care for the people with bleeding disorders (PWBDs) in their countries. Every few weeks we will be profiling an NMO on the WFH News page, showcasing the work that they are doing, the challenges they are facing,…

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Mario Lugones's portfolio put an end to a fund that supports more than half of the institution's functioning. Buenos Aires minister Nicolás Kreplak accuses the nation of "continuing the dismantling and definancing of the health system".

·Buenos Aires, Argentina
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He is a pioneer in the world in the research of pathology that does not have a cure; libertarian management took away a discretionary fund that implies between 50% and 70% of its funding; the danger that its patients face

·Buenos Aires, Argentina
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The state contribution was 70% of the budget of the model organization worldwide that is dedicated to the study and treatment of this rare and serious disorder. Faced with the lack of funds, they opened an account to receive donations.

·Buenos Aires, Argentina
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The Government eliminated a subsidy and left the Hemophilia Foundation, one of the most prestigious in the world, on the brink of bankruptcy.

The Minister of Health of the Nation, Mario Lugones, abolished the discretionary fund that sustains about 60% of the institution

On the one hand, the libertarian administration changed the rules of medical residences and questioned the continuity of the Hemophilia Foundation. The institution, a national and international benchmark in the treatment of this rare disease, is going through an unprecedented crisis following the cut in the state subsidy that sustained much of its operation. Without resources or responses from the Government, the care of more than 4,800 patients…

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la Nacion broke the news in Buenos Aires, Argentina on Tuesday, July 1, 2025.
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