US EditionFamily Grateful for Donations to Fund Life-Altering Drug for Daughter
LANGFORD, BRITISH COLUMBIA, CANADA, JUL 15 – Charleigh's family launched a $500,000 GoFundMe to cover $65,000 monthly Brineura costs after government funding ended due to lack of clinical benefit, with community support ongoing.
- Ten-Year-Old Charleigh Pollock from Langford with Batten Disease received her first privately funded Brineura dose on July 15, 2025.
- The province ended funding for Charleigh's biweekly Brineura treatments on June 18, citing that her condition progressed beyond the drug's effectiveness.
- Charleigh’s family launched a fundraiser with a $500,000 goal to cover the drug cost of about $65,000 per month and ongoing end-of-life care.
- Her mother Jori Fales reported seizures dropped from nearly 100 a day to none, calling Brineura "her lifeline" that improves stability and quality of life.
- Without funding or treatment, Charleigh's condition will rapidly deteriorate, and experts warn stopping medication risks a fatal outcome.
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Leaning Left13Leaning Right1Center1Last UpdatedBias Distribution87% Left
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- 87% of the sources lean Left
87% Left
L 87%
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