Rare disease patients caught in Trump crackdown on foreign grant awards

Rare disease patients caught in Trump crackdown on foreign grant awards

Mid-April was a nerve-racking time to arrive on the National Institutes of Health campus outside Washington, D.C. — it was just two weeks after more than 1,000 NIH employees had been laid off in a chaotic downsizing of the federal workforce that disrupted many of the health agency’s core functions. Ellyn Kodroff had flown in from Chicago for the start of her daughter Jori’s experimental treatment for a rare digestive disorder. Swallowing food wa…

STAT+: Rare disease patients caught in Trump crackdown on foreign grant awards – RamaOnHealthcare

NIH rejects research over paperwork glitches: ‘It’s so devastating for this community’Mid-April was a nerve-racking time to arrive on the National Institutes of Health campus outside Washington, D.C. — it was just two weeks after more than 1,000 NIH employees had been laid off in a chaotic downsizing of the federal workforce that disrupted many [...]