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Raising awareness about rare diseases

Summary by Fairfax County Times
Khartik Uppalapati is a student at Oakton High School. He is also the founder of RareGen, a non-profit that advocates for people with rare genetic diseases. His work has won
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TURIN – PANS and PANDAS syndromes – an acronym for “acute-onset neuropsychiatric syndrome” and “pediatric autoimmune disorder associated with group A beta-hemolytic streptococcus” are two syndromes, often associated due to overlapping symptoms, that affect one child in 12,000 in the 3-12 age group, thus qualifying them as rare diseases. However, these two syndromes are not included in the list of rare diseases and therefore do not benefit from E…

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Fairfax County Times broke the news in on Friday, April 18, 2025.
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