Egypt Plays a Crucial Role in Combatting Rare Diseases - Health Minister

Egypt Plays a Crucial Role in Combatting Rare Diseases - Health Minister

Deputy Prime Minister and Minister of Health and Population Khaled Abdel Ghaffar said Egypt has played a crucial role in combatting rare diseases domestically, in collaboration with corporate partners, and worldwide by supporting the World Health Organization's (WHO) efforts.

Have your say on rare diseases! - Fondazione Gianni Benzi Onlus

The Committee on Public Health (SANT) has launched a public consultation to gain a deeper understanding of the challenges faced by people living with rare diseases and to gather insights from those working in or involved with this field. Taking part is crucial as experiences, ideas, and suggestions provided will help shape the Committee’s future work on rare diseases and contribute to better policies and support. This survey is voluntary and ano…

A plan for the treatment of rare diseases was created, which conditions access to the NHS for those who live outside the country. Whenever the diagnosis is made abroad, patients only enter the public service if they are referred. The document is already in the hands of the Government to be approved.