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’My son has same condition as Jesy Nelson’s twins - doctors called me a pushy mum’

  • On January 4, Jesy Nelson, former Little Mix singer, revealed her eight-month-old twin daughters, Ocean Jade Nelson-Foster and Story Monroe Nelson-Foster, have been diagnosed with SMA type 1 after being born premature at 31 weeks on May 15.
  • A few months ago, Nelson's mother noticed Ocean and Story showed reduced leg movement, and early feeding struggles led to months of testing before diagnosis.
  • SMA type 1, the most severe form, affects every muscle, and doctors at Great Ormond Street Hospital warned the twins will probably never walk or regain neck strength, leaving them disabled.
  • Nelson says she has had to act like a nurse, managing breathing machines at home within two weeks of diagnosis during the most heartbreaking time of her life.
  • Nelson went public to raise awareness because time was of the essence as SMA type 1 is life‑limiting, with affected children rarely surviving beyond two years without timely care.
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Jesy Nelson shared in a social video that her premature twin daughters were diagnosed with a serious illness.

·Budapest, Hungary
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Decider broke the news in United States on Sunday, January 4, 2026.
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