“I Want to Mother, Not manage.” How Disability Emergency Impacts Households

Mercedes Zessa is the mother of Milo, eight years old who has epilepsy and cerebral palsy. They live in City Bell. Mercedes has a headline phrase: “I want to maternal, not manage or process.” She summarizes a lot of what it means to get inside the homes of people with disabilities this national emergency that is being demanded with different marches and that next Thursday would be treated at the request of thousands of families in Congress. “Whe…

The city of Santa Fe was the scene this Thursday of a massive mobilization in the framework of the national strike of service providers for people with disabilities. The protest focused on the demand for the late payments of social works and the urgent need for an update of tariffs, frozen since the beginning of 2024. The demonstration, which brought together professionals, people with disabilities and family members, started from El Molino Fábr…

“I have autism and I need them to pay my therapists because if they don’t get the therapy they’re going to shut down. Please pay our therapists because if they don’t, I won’t see them anymore,” he asked the Titian cameras, a baby who took part with his mom in the massive protest about the rights of people with disabilities. His testimony moved and reflected a situation that is widespread: after six months without updating tariffs by the National…

The measure is replicated throughout the country, within the framework of the national strike that have been carried out by professionals of the sector, who are suffering an enormous adjustment. Santa Fe will today be one of the headquarters of the March of the Torchs, which will be replicated throughout the [...] The entry Santa Fe marches for the emergency in disability was first published in Pausa.