US EditionThe Struggle of a Mother in León to Recognize a 79% Disability of Her Child Suffering From a Rare Disease
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Guzman Carro is a young 15-year-old teenager who was born with congenital nystagmus, a rare disease that affects his visual acuity.This disease was diagnosed to him when he was only three months old and since then his mother, Gemma Tagaro has not failed to satisfy all his needs."My son's congenital nystagmus affects his eyesight.My son's is horizontal and has only one fixation point that is where he blocks that movement," explains Gemma. "My son…
The Association Hyper IGM Syndrome 'The Colors of Guzmán' has just been born with the purpose of raising funds to investigate this rare disease suffered by the Leonese child Guzmán Fernández Díaz-Caneja with a first event that will mobilize all possible solidarity in the village of Grulleros on Saturday, August 23.
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