Campaigners in final push for Skyclarys approval

The Irish Times view on drug reimbursement: lessons from the Skyclarys saga

The process of negotiating drug reimbursements is opaque and drawn-out

Pressure mounts as HSE to decide tomorrow on reimbursement of €280k-a-year Skyclarys drug

Taoiseach Micheál Martin met families affected by the rare genetic disorder last week.

Hundreds protest as deadline for final decision over potentially lifesaving Friedreich's Ataxia treatment looms

A protest in Dublin city centre saw hundreds of people call for the HSE to approve the drug Skyclarys for reimbursement

Campaigners in final push for Skyclarys approval

A demonstration is being held in Dublin city centre calling on the HSE to approve reimbursement for Skyclarys, a drug used to treat Friedreich's Ataxia.

Protest in Dublin over Skyclarys reimbursment

It is a rare, inherited neurodegenerative disorder that affects the nervous system and can lead to severe movement and coordination issues, often beginning in childhood.

Govt & HSE must ensure people living with Friedreich’s Ataxia have access to Skyclarys-Greens

Govt & HSE must ensure people living with Friedreich’s Ataxia have access to Skyclarys-Greens joseph.keogh@g… Mon, 08/24/2026 - 15:54 Carolyn Moore.jpg Image The Green Party has today called on the Government and the HSE to urgently work together to find a pathway to provide access to Skyclarys for people living with Friedreich’s Ataxia.  Skyclarys, the first treatment approved in Europe for Friedreich’s Ataxia, can slow the progression of the…