Building and nurturing resilience in children with hemophilia

Building and nurturing resilience in children with hemophilia

Growing up, I was coddled — constantly protected from the world, from pain, and often, from myself. My parents loved me deeply, but understandably, fear sometimes ran the show. Decisions were made for me. I wasn’t encouraged to speak up, take risks, or manage my condition. They meant well. But I’m still wrestling with the impact of being so heavily guarded: difficulty with self-care, hesitation to assert myself, and the feeling that independence…