Asembia AXS25: Emotional Support Transforms Specialty Pharmacy Patient Care

Without a doubt, medical care for people with rare diseases (ERR) cannot be limited to diagnostics and pharmacological treatments. There is a silent —the emotional — dimension where a daily battle is also fought. Andreina Solórzano, a psychologist at the Fabry Group, has made this accompaniment her professional trench. “Emotions are not medicated, but they can be treated with respect and empathy,” says Solórzano. Her job is to create safe spaces…

Asembia AXS25: Emotional Support Transforms Specialty Pharmacy Patient Care

Specialty pharmacy experts discuss how emotional support, addressing patient loneliness, and peer-to-patient programs can significantly improve medication adherence and patient care.

Lessons Learned as a 3rd-Generation Fabry Disease Patient – Patient Worthy

When asked about the emotions they felt when they were diagnosed, many members of the rare disease community recall a sense of loneliness. Many of us turn to advocacy group conferences, specialist medical centers, or even social media to try to find a community of others with the same diagnosis who can understand our experiences. […]