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Armagh PKU campaigner gets set for Westminster in bid for new ‘lifechanging’ drug
Summary by Armagh I
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Armagh PKU campaigner gets set for Westminster in bid for new ‘lifechanging’ drug
An Armagh man acting as the only Northern Irish member of a UK-wide charity for people living with Phenylketonuria (PKU) is preparing for another “uphill battle” in campaigning for the roll-out of a new lifechanging medication. Chris Cassidy – father of 14-year-old Daragh Cassidy, who lives with PKU – has long been an advocate for better awareness and access to treatment. PKU is a rare medical condition which restricts the sufferer’s daily prote…
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