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In total, 42 have been published by Sickle Cell Disease News which Ground News has aggregated in the past 3 months.

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Top Sickle Cell Disease News News

FDA grants orphan drug status to oral inhibitor rilzabrutinib for SCD

Maryland · Maryland

FDA grants orphan drug status to oral inhibitor rilzabrutinib for SCD

The U.S. Food and Drug Administration has granted orphan drug status to Sanofi’s rilzabrutinib, an investigational therapy aimed at preventing painful vaso-occlusive crises (VOCs) in people with sickle cell disease (SCD). This designation intends to encourage companies to develop therapies for rare diseases, or those affecting fewer than 200,000 people in the U.S. It provides several incentives, such as exemption from certain fees, tax credits f…Read Article

Algorithm helps reduce unneeded hospital stays for sickle cell...

Hospitals · Maryland

Algorithm helps reduce unneeded hospital stays for sickle cell...

An algorithm that grew out of a collaboration between different specialties at the Medical University of South Carolina (MUSC) may help reduce unnecessary hospital admissions for children with sickle cell disease (SCD), according to a new study. “This algorithm safely allows our care of these patients to align with national thoughts and practice, while also considering quality of life for our patients and their families,” Shayla Bergmann, MD, pe…Read Article

Physical therapy access may be issue for young sickle cell patients

Columbus, Ohio · Columbus

Physical therapy access may be issue for young sickle cell patients

Adolescents and young adults with sickle cell disease may face challenges in accessing physical therapy, a study reports.Read Article

High mortality from pneumococcal meningitis in children with SCD

Meningitis — an inflammation of the protective membranes surrounding the brain and spinal cord — remains associated with a case-fatality rate of nearly 30% in children with sickle cell disease (SCD), according to the findings of a new two-decade study from France. This is despite vaccinations for SCD children against the pneumococcal bacteria that cause meningitis and other diseases. Per the researchers, this study demonstrated that, in most cas…France · France Read Article

Let’s explore the different types of sickle cell crisis

Living with sickle cell disease is no small feat. It’s a condition that comes with a host of symptoms, complications, and issues that are unpredictable and span a lifetime. When people think about sickle cell disease, the most commonly known symptom is the vaso-occlusive crisis, also known as a pain crisis. But did you know patients can experience other types of crises? I’ll take you through them now. Recommended Reading May 13, 2025 News by A…Read Article

My thoughts on recovery, 3 days after a sickle cell pain crisis

I’m a big advocate for giving myself time to recover after a sickle cell pain crisis. After my last crisis, however, I severely underestimated how long this process would take. It’s been two months now, and I’m finally able to return to everything I enjoy. I recognize myself again. Three days after the crisis, I recorded an audio journal entry to reflect on at a later date. I tend to forget the pain and feelings associated with a crisis, which m…Read Article

Looking at Barriers to Access for New Sickle Cell Disease Therapies, with Shaina Willen, MD

In her interview at ATS, Willen further described elements highlighted in her presentation on new treatments for sickle cell disease.Maryland · Maryland See the Story

Dartmouth Holds Blood Drive Focused on Sickle Cell Disease

100% Center coverage: 1 sources

Donations made Monday at Dartmouth College can go a long way toward helping people with the most common genetic blood disorder in the United States.See the Story

SCD, sickle cell trait may increase diabetic eye disease risk: Study

Sickle cell disease (SCD) and sickle cell trait (SCT) can increase the risk of eye diseases associated with diabetes mellitus, according to a recent study. Findings indicated patients who had diabetes along with SCT or SCD were more likely to have procedures to treat eye disease and poorer overall vision than those who had diabetes alone. “Individuals with [diabetes and sickle cell] represent a vulnerable population with a high burden of potenti…Read Article

On sickle cell habitus, the physical symptoms of severe cases

Sickle cell habitus, the distinct physical features of some people with sickle cell disease, are typically associated with patients who have more severe forms of the disease, such as sickle cell anemia. But the severity of sickle cell disease can vary greatly from one patient to another because of a range of factors. Not all sickle cell patients will have the same physical features. In Nigeria, where I live, the public widely recognizes some of …Nigeria · Nigeria Read Article

Data from Phase 3 trial testing mitapivat in SCD expected this year

Toop-line data from RISE UP, a clinical trial testing Agios' mitapivat for treating sickle cell disease, is expected by year's end.United States · United States Read Article

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