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Top #MEAction Network News

Journalist and Author Isabel Wilkerson Reflects on This Year's Juneteenth
Juneteenth · United States

Journalist and Author Isabel Wilkerson Reflects on This Year's Juneteenth

100% Left coverage: 1 sources
Isabel Wilkerson, author of "Caste" and "The Warmth of Other Suns," reflects on this year's Juneteenth celebrations — and on the push-and-pull of the Black experience in America.See the Story
Pillow Writers en Español
San Juan, Puerto Rico · San Juan

Pillow Writers en Español

#MEAction is thrilled to announce Pillow Writers Network has expanded once again! This time with a dedicated group for Spanish speakers:Join us for our Pillow Writers En Español meetings! A place where ME/CFS/Long Covid patients are welcome to participate through writing.This #MEAction-sponsored event has been held in English for over three years.We are now offering it in Spanish so that more ME/CFS/Long Covid patients can find a welcoming place…Read Article
Minnesota’s Long COVID Funding Saved from Elimination
Saint Paul, Minnesota · Saint Paul

Minnesota’s Long COVID Funding Saved from Elimination

We have good news! The first-in-the-nation Long COVID program run by the Minnesota Department of Health (MDH) has been saved from elimination! This means #MEAction will be able to continue its work helping Minnesotans with ME/CFS, Long COVID and related conditions access vital home and community-based support services, as part of our multi-year grant.  Last month, the Minnesota House Health Finance and Policy committee unveiled a budget proposal…Read Article

CCRI director alarmed over disability service cuts in Minnesota House budget bill

60% Left coverage: 5 sources
MOORHEAD — The executive director of a Moorhead nonprofit says she is deeply concerned about major budget cuts to disability services passed by the Minnesota House on Monday, May 5. Shannon Bock of CCRI says the House version of the Human Services budget bill includes more than $1 billion in cuts over the next two budget cycles. CCRI, which has served people with disabilities since the 1970s, has been lobbying lawmakers for months against those …See the Story

#MEAction Georgia Volunteer, Maggie Boxey, Speaks at TEDxOjai

#MEAction Georgia recently had a huge accomplishment. Maggie Boxey, who is a member of the Georgia State Chapter, a Navy veteran, and a published author, recently gave a Tedx talk about her experience as a person with ME. Maggie was diagnosed a year ago but has been sick since 2020. Before becoming sick Maggie and her family were active, going on weekend hikes, and taking multiple vacations. Maggie also worked as a sixth grade math teacher. “I h…Georgia, United States · GeorgiaRead Article

Medicaid Matters Forum expresses concerns over potential spending cuts

67% Center coverage: 3 sources
RICHLAND, Pa. (WTAJ)-- With potential cuts coming to several federally funded programs, concerned citizens gathered at the John P. Murtha Center at the Pitt-Johnstown campus to discuss what impacts cuts to Medicaid could have on their communities. The newly formed group "Locals For Good" hosted the forum. The group describes itself as a non-partisan advocacy outlet for residents in Cambria and Somerset Counties. During the meeting a panel of exp…United States · United StatesSee the Story

Why We’re Sending out an SOS this #MillionsMissing

On May 12th, #MEAction and the #MillionsMissing are sending out an SOS to Congress to Save our Support Systems. Save our Science. Save Our Society. HERE’S WHY: Healthcare, research funding and accessibility were already incredibly fragile for people with myalgic encephalomyelitis (ME), Long Covid and the disability communities. Now, we are seeing constant threats to the infrastructures that sustain our communities – threats to our healthcare & h…United States · United StatesRead Article

Belle and Sebastian’s Stuart Murdoch on reading Judy Blume to his kids

Coverage: 4 sources
In his debut novel, “Nobody’s Empire,” Belle and Sebastian singer Stuart Murdoch tells a coming-of-age story that mirrors his own. Set in the early 1990s, Stephen is a young man whose life is upended when he develops chronic fatigue syndrome, also known as, myalgic encephalomyelitis (ME). Liz Ohanesian talked to Murdoch about his own story and the themes that are embedded throughout his work. Here, he shares what he’s been reading.  Q. Is there …Glasgow, Scotland · GlasgowSee the Story

#MillionsMissing 2025: Sending Out An SOS

This #MillionsMissing, we are launching a campaign that is largely focused on the seismic cuts being made to research funding, healthcare, and disability services in the U.S. We know that the state of U.S. research institutions will have a massive impact on whether we are able to advance research for myalgic encephalomyelitis (ME) and Long COVID over the next decade. This will impact everyone globally. We encourage you to join in the fight as we…United States · United StatesRead Article

HHS’s Long COVID Office Is Closing. What Will This Mean for Future Research and Treatments? – Monkey Viral

HHS’s Long COVID Office Is Closing. What Will This Mean for Future Research and Treatments? The Office for Long COVID Research and Practice was instrumental in coordinating the U.S. government’s initiatives to treat, diagnose and prevent the mysterious postviral condition that affects millions of people today By Lauren J. Young edited by Dean Visser Under […]White House · United StatesSee the Story

Long Covid campaigners send open letter to Health Secretary

60% Right coverage: 5 sources
More than 13,000 people have signed a petition calling for urgent investment in Long Covid and chronic fatigue services - highlighting the need to fund research that leads to effective treatmentsWhite House · United StatesSee the Story

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