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Published 1 year ago

Toddler with fatal genetic disease given world's most expensive drug - but it's too late to save sister

Summary by Ground News
A 19-month-old girl has been successfully treated for a fatal genetic disease with the world's most expensive drug. eddi Shaw is the first person in the UK to receive Libmeldy, a treatment that corrects the underlying genetic fault that causes metachromatic leukodystrophy (MLD). The gene therapy has a list price of £2.8m.

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BBC NewsBBC News

UK’s most expensive drug Libmeldy saved Teddi Shaw, but is too late for her sister

A toddler becomes the first to be treated by the NHS with a new gene therapy costing £2.875m.

1 year ago·United Kingdom
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The GuardianThe Guardian

Girl with deadly inherited condition is cured with gene therapy on NHS

Teddi Shaw, from Northumberland, first recipient on health service of Libmeldy, world’s most expensive drug

1 year ago·London, United Kingdom
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The IndependentThe Independent

Toddler becomes first child in UK to receive revolutionary gene therapy

Teddi Shaw suffers from deadly metachromatic leukodystrophy (MLD) but has been given the chance of a normal life.

1 year ago·London, United Kingdom
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Daily MirrorDaily Mirror

'Miracle' gene treatment cures baby facing death - but comes too late for sister

Little Teddi Shaw has become the first NHS patient to receive the treatment for metachromatic leukodystrophy. The 19-month-old was diagnosed with MLD last April

1 year ago·London, United Kingdom
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Metro NewsMetro News

Toddler becomes first UK child to get revolutionary £2.8 million gene therapy

19-month old Teddi Shaw suffers from metachromatic leukodystrophy (MLD).

1 year ago·London, United Kingdom
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The SunThe Sun

Toddler becomes first child in UK to have gene therapy cute fatal disorder – but it came too late to save older sister

A TODDLER has become the first child in Britain to have gene therapy to cure a fatal disorder — but it has come too late to save her older sister. Teddi Shaw, who is 19 months old, had the treatment for meta­chromatic leukodystrophy (MLD), which destroys the nervous system and organs. PATeddi Shaw (left) with her sister Nala[/caption] But it will not work for her three-year-old sister, Nala, as her condition is already too advanced. Initially, t…

1 year ago·United Kingdom
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