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Toddler with fatal genetic disease given world's most expensive drug - but it's too late to save sister

Summary by Ground News
A 19-month-old girl has been successfully treated for a fatal genetic disease with the world's most expensive drug. eddi Shaw is the first person in the UK to receive Libmeldy, a treatment that corrects the underlying genetic fault that causes metachromatic leukodystrophy (MLD). The gene therapy has a list price of £2.8m.

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Bias Distribution

  • 47% of the sources are Center
47% Center
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The Times broke the news in London, United Kingdom on Wednesday, February 15, 2023.
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