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The complexities of deciding to have more children in a rare...

When people hear about in vitro fertilization (IVF) after a rare disease diagnosis, they probably think the hardest part is either the cost or the medical side of things. Those parts are definitely overwhelming. But for me, the hardest part wasn’t the science; it was the question that kept circling in my mind, over and over: Could I mentally handle another child? After my daughter Caroline was diagnosed with Pompe disease, our whole world shifte…
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Pompe Disease News broke the news on Friday, May 15, 2026.
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