The Mother of All Art Shows raises money online for rare gene disorder

The Mother of All Art Shows raises money online for rare gene disorder

Cayucos resident Rene Roquet is a mom on a mission. One that raises awareness for her daughter Rooney, who suffers from a rare CASK gene mutation, one of the rarest neurological conditions in the world.This Mother's Day weekend, Project CASK hosts "A Tribute to Motherhood" with the "Mother of All Art Shows". It's an online auction with artwork exploring themes of motherhood, caregiving, family, and love.Project CASK officials say each of the 30 …

Texas girl to become first patient to receive treatment for rare genetic disorder

DALLAS — An 11-year-old from Rowlett, Texas, is set to make medical history as the first person in the world to receive treatment for NARS1.