Surbiton family back UK wide campaign for greater awareness of rare condition which affects their daughter
Summary by londonworld.com
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1 Articles
Surbiton family back UK wide campaign for greater awareness of rare condition which affects their daughter
A Surbiton couple, whose 9 year-old daughter has Dravet Syndrome, a rare, life-limiting, form of epilepsy, are backing a UK-wide campaign to raise awareness of the condition to help improve diagnosis and care. Jennifer and Tom Allen are among those helping charity Dravet Syndrome UK to spread the word and raise vital funds by sharing their stories during June which is Dravet Syndrome Awareness Month.
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