Study highlights need for holistic support for rare disease patients

Study highlights need for holistic support for rare disease patients

People affected by rare diseases like aromatic L-amino acid decarboxylase (AADC) deficiency require more than just medical support: These patients and their caregivers need a holistic approach that also addresses several unmet needs, such as providing social and financial assistance. That’s according to a new study, “Criteria to evaluate unmet health-related needs of persons living with rare diseases and their caregivers: rapid literature review…