Rare skin condition patients gain access to new treatment

First EB-specific gel treatment in Ireland made available by the HSE

EB, also known as butterfly skin, is caused by the absence of proteins between the skin layers, making the skin ultra fragile and easy to wound.

Rare skin condition patients gain access to newly approved drug

The new gel treatment will be available to people living with epidermolysis bullosa.

'Transformative' treatment for painful and incurable condition goes on sale

The HSE’s move to make Filsuvez available as an important step to ease the lives of hundreds of people battling the illness

Rare skin condition patients gain access to new treatment

The first authorised treatment for a painful and incurable skin condition has been made available in Ireland, in what has been described as a "transformative moment".

People with rare ‘butterfly skin’ condition to get first authorised treatment

Debra says introduction of new gel treatment Filsuvez is ‘transformative moment’ for those with epidermolysis bullosa