Parliamentarian reverses course on rare disease drug price provision in tax bill

Heinrich-backed ORPHAN Cures Act returns in GOP reconciliation bill, critics say it gifts Big Pharma $5 billion

Senate parliamentarian reverses an earlier ruling, letting a provision that shields multi-use orphan drugs from Medicare price talks ride on Republicans’ budget package as patient advocates warn of higher costs for taxpayers and seniors.

Parliamentarian reverses course on rare disease drug price provision in tax bill

A provision protecting expensive medications, used to treat multiple rare diseases, from the Medicare drug price negotiations made its way back into the GOP budget reconciliation bill after a last-minute switch from the Senate rule keeper, marking a sizable victory…

Senate parliamentarian backtracks on rare disease drug price provision

A provision protecting expensive medications, used to treat multiple rare diseases, from the Medicare drug price negotiations made its way back into the GOP budget reconciliation bill after a last-minute switch from the Senate rule keeper, marking a sizable victory for pharmaceutical companies. Senate Parliamentarian Elizabeth MacDonough announced Monday afternoon that the language from the ORPHAN Cures Act met the qualifications to stay in the …